Attending: Dick L, Terry G, Rod C, Sue C, Dianna W, Tim W, Angela D, Sarah W.
Apologies: Norma Y, Carolyn G, Kate A, Zib L, Ann R, John I, Margaret I, Francis W, Hazel L,
Minutes of last meeting – 6th September 2018
Matters arising – There were none
Speaker – Sarah Williams (Carers in Herts)
Our intended speaker was to be Chris Lawrence Chairman HPFT who unfortunately had to drop out.
Sarah was kind enough to step in (at a relatively late moment) to share with us a CIH proposal for a pilot project, written by her, aimed at addressing the lack of support to those loved ones with long term enduring and or complex issues who have been left to “tick over” and are basically stuck in the system “The forgotten ones”.
Sarah began with outlining her experiences over some 11 years of working with service users with long term enduring conditions. Sarah also acknowledged: taking into account the Mind Report “Life Support” (this focuses on the same group of service users and their need for practical advice), the various HPFT reports and meetings with the HPFT and voluntary sector organisations.
From the above experiences Sarah highlighted the need for a new treatment model that would improve the quality of life for this group of service users which in turn would improve the quality of life of their Carers.
Such a model, Sarah outlined, would be a team of support workers and not just one person who might change or move on (eg Care Co-ordinator). They whole team would not necessarily have to be qualified but would be overseen by a qualified person. Carers would also be involved and there would be produced a clear and agreed plan of who does what when and how (a true implementation of the triangle of care).
The strength of the plan would be providing the support/help on what the service user wants to do taking into account their talents/skills, strengths, likes and aspirations.
While it was thought that it would be a 9-5 service, the key aims would be to help them with everyday tasks, build confidence, gain access to services providing practical, emotional and social support, information and advice to assist managing of their MH condition and to living independently.
The service users covered would include those:
- with an enduring MH problem such as schizophrenia and /or complex needs
- receiving services for more than 10 years
- who would be willing to fully engage with the team
However, it is to be remembered that non-engagement or lack of motivation are the symptoms of their illness and not their choice.
The proposal was submitted as part of the CIH response to NHS England’s request for suggestions to spend additional monies that is expected to become available
Sarah agreed that there is much more work to do on identifying numbers and developing the evidence base for this approach if it is to receive funding.
Sarah asked if anyone had knowledge of schemes running in other areas to which the group suggested Trusts with apparent good reputations including Trusts covering Leeds, Cardiff, Nottingham, Newquay.
Additionally, it was thought that the RHS would have some gardening social & therapeutic schemes. The Wendover model (thought to be by Vera Du Trois or similar name) was also mentioned.
Discussion around possible questions for Dr Jane Padmore (Director of Quality & Safety of the Trust) produced questions around the following issues:
- Why we should be talking to the Trust when they keep responding with “ We have no money”?
- Why did the Trust only receive a CQC rating of Good and not the Great they had hoped for?
- What damage or limitations to providing services has occurred due to lack of recruitment of key skills?
- What are those key skills and actual shortfalls at this point?
- What are the constraints to recruitment that need to be addressed?
- What are the Trusts upcoming plans and initiatives for overcoming those hard to fill vacancies?
Feed-back from members attending external meetings
Dick attends the Spot the Signs working group and fed back his view that he is still none the wiser how the working groups efforts thus far will help suicide prevention. They have organised the training of fire brigade and police but he is not yet clear how this approach will make a difference.
Dick went on to make the point that over the years our feedback to the Trust has been about what we thought was wrong and it should have been telling them what should be done. Additionally, we should be talking to those (The HCC and CCG) who are responsible/accountable for the funding rather than the Trust who don’t control the money
Any Other Business
Rods next group will be on the 30th October at the Wellbeing Centre Hemel Hempstead 11:00 – 1:00. This will include coffee and cake plus a one hour workshop for Carers provided by the Wellbeing Team. The workshop will possibly introduce the talking therapy CBT. Due to limited space it was agreed that 10 places would be offered to our group and 10 places offered to Rods usual attendees.
The menu for the Christmas dinner was presented by Rod C .and it was agreed that Terry G. would scan it and send it out to the group members with the request that they choose either the 2 course or 3 course option and email Dick L. with their preferred dishes.
A quick reminder about the Christmas Dinner is
- Venue: Thee Plough in Leverstock Green
- Date: Thursday 6th December.
- Time: 7:00 for 7:15
Date of next meeting – 1st November 2018, speaker Dr Jane Padmore (Director of Quality & Safety of the Trust)